What Does the Evidence Show About Patient-Reported Outcomes, Quality of Life, and Survival?
Patients know their own experiences best. Evidence has shown that providers are unaware of about half of patients’ symptoms during cancer care. When patients directly report their symptoms using online questionnaires, it can help close this gap in communication. Bringing the patient voice into practice using patient-reported outcomes (PROs) can not only make us aware of their symptoms—enabling earlier interventions—but can also make care delivery more patient-centered.
Improving Cancer Care Through Patient-Reported Outcomes
Technology can—at times—seem miraculous, especially as it evolves in healthcare settings. Simple technologic tools have been able to lower costs, increase efficiency, minimize delays in treatment times, and even provide new, lifesaving procedures for cancer treatment.
Adverse Events Influence Patient-Reported Quality-of-Life Scores
Researchers conducted a single-center, cross-sectional study to examine the relationship between patient-reported quality-of-life (QOL), adverse events (AEs), and treatment characteristics (including tumor type, drug class, number of cycles, and treatment intent). The study’s findings were presented at the 2017 ASCO Annual Meeting.
Discussion About Goals of Care May Improve Patient Understanding
Discussing goals of care with patients with advanced cancer can provide better information on the disease, treatment options, and prognosis, as well as elicit patient values. A randomized, controlled trial tested a coaching model to improve healthcare providers’ communication on goals of care. The study’s findings were presented at the 2017 ASCO Annual Meeting.
Patient-Reported Tool to Evaluate Distress Predicts Survival
The Living With Cancer (LWC) patient-reported outcome (PRO) tool evaluates distress in patients with advanced cancer using a seven-item Likert survey to measure performance status, pain, burden (financial and family), and depression, with scores ranging from 0–112.
Using Patient-Reported Outcomes Improves Symptoms in Adults With Acute Leukemia
Ashley Bryant, PhD, RN, OCN®, assistant professor at the University of North Carolina at Chapel Hill School of Nursing, was the recipient of the 2017 Victoria Mock New Investigator Award and gave a lecture at the 42nd Annual Congress in Denver, CO, on her work on patient-reported symptoms and quality of life.