ONS member Christopher R. Friese, PhD, RN, AOCN^®, FAAN, oncology nurse researcher and professor at the School of Nursing in the University of Michigan in Ann Arbor, was named one of seven researchers and clinicians that President Joe Biden appointed to the National Cancer Advisory Board on September 15, 2021.

To achieve value-based, person-centered care, the U.S. healthcare system must promote sustainability and readiness to prepare for future public health emergencies such as the COVID-19 coronavirus pandemic, the Centers for Medicare and Medicaid Service (CMS) said. In August 2021, CMS announced that the Hospital Inpatient Prospective Payment System and Long Term Care Hospital Prospective Payment System final rule will take effect on October 1, 2021, in support of that work.

Nursing has long been associated with healing hands. Laying hands on patients’ bodies is personal and intimate, providing comfort, soothing reassurance, strength, and hope. It builds a sacred trust that engenders care. When that foundational element of nursing was removed to follow social distancing protocols during the COVID-19 coronavirus pandemic, nurses found a new avenue to connect with their patients—through the use of telehealth.

In its first year, new presidential administrations release a skinny budget that contains more topline items rather than deep dives into each agency and subdivision. Following suit, in April 2021 the Biden-Harris administration released its request for discretionary funding with limited definition, but it was enough to foreshadow the fiscal year (FY) 2022 funding cycle.

Achieving health equity tops the list of the Patient-Centered Outcomes Research Institute’s (PCORI’s) newly updated National Priorities for Research, which the institute released on June 24, 2021.

The COVID-19 coronavirus pandemic was a wake-up call for preparedness: it caught society unaware and highlighted gaps in virtually every modern-day system. With those lessons learned, when the United States started removing pandemic-related public health restrictions and we began a return to “normal,” experts from all corners of society started looking to what the future will bring.

The Centers for Disease Control and Prevention (CDC) is “committed to continuing to advance the science around COVID-19, moving more vaccines into more communities—especially those communities most at risk for COVID-19 infection—and working to improve health equity,” CDC Director Rochelle Walensky, MD, MPH, said during a March 2021 U.S. Senate Committee on Health, Education, Labor, and Pensions (HELP) hearing. She joined Anthony Fauci, MD, David Kessler, MD, and Peter Marks, MD, PhD, in sharing witness testimonies about their agencies’ response to the pandemic and how to better prepare for future threats.

In July 2021, the Biden-Harris administration, through the U.S. Departments of Health and Human Services (HHS), Labor, and Treasury and the Office of Personnel Management, issued the Requirements Related to Surprise Billing interim final rule to restrict surprise billing. The rule applies to billing for patients in job-based and individual health plans who obtain emergency care, nonemergency care from out-of-network providers at in-network facilities, and air ambulance services from out-of-network providers.

Those without healthcare coverage can now purchase annual policies through state exchanges until August 15, 2021, under the Centers for Medicare and Medicaid Services’ (CMS’s) extended Special Enrollment Period (SEP), ensuring continued access to affordable coverage for Americans during a time of healthcare uncertainty.

In a bipartisan effort that recognizes patients' concerns about telehealth’s accessibility, the U.S. Senate promoted legislation to reduce barriers to care. Senators Brian Schatz (D-HI), Roger Wicker (R-MS), Ben Cardin (D-MD), John Thune (R-SD), Mark Warner (D-VA), and Cindy Hyde-Smith (R-MS), along with 50 colleagues, introduced the Creating Opportunities Now for Necessary and Effective Care Technologies (CONNECT) for Health Act of 2021. The bill would “expand coverage of telehealth services through Medicare, make permanent COVID-19 telehealth flexibilities, improve health outcomes, and make it easier for patients to safely connect with their doctors.”

Nurses have an innate drive to improve healthcare delivery. When I was a unit director, I focused on nursing unit turnarounds to improve quality of care. I used mediation as the model for resolving long-time conflicts and provided training to effectively engage and communicate. I started my mediation practice in 2003 to help physicians, nurses, and administrators resolve the complex issues that get in the way of patient care and create stressful work environments.

In May 2021, U.S. Representative Lauren Underwood, RN (D-IL), introduced the Primary and Behavioral Health Care Access Act that, if passed, would require private health insurance plans to cover three primary care visits and three behavioral health or substance abuse disorder visits per year without cost sharing. Underwood’s goal was to promote legislation that would make health care more accessible and affordable. 

A shining light to guide a burgeoning field—often referred to as “the lady with the lamp”—Florence Nightingale was a revolutionary figure in nursing, transforming care by simple but radical actions. Through scientific research she showed that sanitation and healthy diets improved patient outcomes, and through advocacy she fought for access to those conditions for all of her patients. She modeled the way for nurse advocates throughout history and into today. 

Although not expressly written as part of the U.S. Constitution, from the earliest days of the republic, strong presidents have issued proclamations, instructions, and statements that eventually evolved into executive orders carrying the weight of the federal government on new directives meant to change policy. George Washington issued his first presidential edicts to have his Cabinet report on departmental activities. 

For a long time, like so many other nurses, I thought of myself as the “regular kind” of advocate for my patients, speaking out for their needs on an individual basis at the institutional level while supporting them as they navigate a cancer diagnosis. But I’ve more recently discovered an even more empowering role: I’m now a health policy advocate.

The ONS Board of Directors had a full agenda for its longer quarterly meeting on February 18–19, 2021. Among other work, it evaluated the results of the annual member satisfaction survey, discussed the fiscal health of the organization based on year-end financials, and continued the conversation on diversity, equity, and inclusion in nursing and cancer care. Details on the Board’s decisions in key areas follow, and ONS members can review the full meeting minutes at ons.org/board-minutes.  

More nurses are diagnosed with the COVID-19 coronavirus than healthcare providers in any other discipline. Despite that sober statistic, very few congressional committees’ COVID-19 legislation proposals support essential workers like nurses. U.S. Representatives Jackie Speier (D-CA) and Joe Neguse (D-CO) introduced a bill to address those concerns.  

When the Obama administration announced the National Cancer Moonshot in January 2016, its goal was to invest $1 billion in cancer research to make a decade’s worth of discoveries in just five years. The funding was distributed across the National Institutes of Health, U.S. Food and Drug Administration, Department of Defense, and Department of Veterans Affairs to propel the Moonshot forward.

In honor of World Cancer Day on February 4, 2021, First Lady Jill Biden, EdD, took a virtual tour of the National Institutes of Health’s (NIH's) National Cancer Institute (NCI) and met with NIH Director Francis Collins, MD, PhD, and NCI Director Ned Sharpless, MD, to discuss advancements in cancer research, the steady decline in cancer mortality, and cancer-related legislation, among other topics. 
 

President Joe Biden made several campaign promises to improve or safeguard health care for all Americans with a focus on scientific and medical evidence. Shortly after the transfer of power, the Biden administration appointed and nominated public health experts to lead the various federal agencies dedicated to safety and biomedical research. 

In a rare moment of bicameral success, 49 U.S. House of Representatives and Senate members introduced legislation to make permanent the Medicare telehealth coverage that had been introduced as a temporary measure during the COVID-19 coronavirus pandemic.

“The first 100 days,” a phrase coined by President Franklin Delano Roosevelt in 1933, is an opportunity for a new administration to outline its early accomplishments and set a tone of reassurance. Under that philosophy, the Biden-Harrison transition team issued a series of announcements and nominations beginning in November 2020 to set a tenor and provide insight on the first phase of the new presidency.

Shortly after declaring victory in the 2020 president election, the Biden-Harris transition team created a bipartisan COVID-19 advisory board. Staffed by experts, the board was hailed as a science-driven committee eager to flatten the curve. However, it had one downfall: it lacked a nurse. In response to a viral petition for nurse representation, the transition team appointed Seattle, WA, nurse Jane Hopkins, RNMH, to the advisory board on November 28, 2020.

The November 2020 presidential election saw a historic turnout at the polls. Before election day, more than 99 million of the 240 million registered American voters had already cast their ballots, and some predicted that as many as 155 million voters would exercise their constitutional franchise to make their voices heard, a record 65% of the electorate. The distinct differences between the two major presidential candidates indicated that people were engaged and took to heart the grand idea of participatory democracy.

Lung cancer knows no state boundary or political ideology. But it can bring the two sides together, like it did when U.S. Senators Tina Smith (D-MN), member of the Senate Health Committee, and Marco Rubio (R-FL) introduced a resolution to recognize November as National Lung Cancer Awareness Month. The resolution, which ONS supports, promotes the importance of and need to improve lung cancer early detection.

Many of her famous quotes reveal a dedication to advocacy as well. Here’s what the most well-known pioneer of nursing taught us about raising your voice for what’s right—in health care and policymaking.

Over the summer, I coordinated a now all-too-familiar exercise: a Zoom call with multiple ONS Kansas-area chapter members, nurse experts, patient advocates, and elected officials. Spearheaded by the ONS National Office, we hosted an incredibly personal and informative conversation to discuss the COVID-19 coronavirus, how it affects patients with cancer, and the legislative and regulatory environment throughout our state. Our bipartisan, multitiered event brought together oncology nurses from across the state, and, although some political views were different, we united in our commitment to nurses and public health.

Legislation aimed at reducing health care insurance premiums, introduced by U.S. Representative Lauren A. Underwood (D-IL), is included as part of the Patient Protection and Affordable Care Enhancement Act.

Building on the success of the 21st Century Cures Act passed in 2016, U.S. Representatives Diana DeGette (D-CO) and Fred Upton (R-MI) have begun work on the follow-up Cures 2.0 Act, intended to “safely and efficiently modernize the delivery of health care in the wake of the coronavirus pandemic,” the representatives said in a press release.

Nurses serve a critical and proven role in reducing the burden of cancer and improving the lives of patients with cancer. Yet, for millions of people across the globe, access to health care is not a given, and nurses don’t have the educational and occupational support to perform to their full abilities.

The revolutionary declaration written 244 years ago, proclaiming that “all men are created equal,” maintains that a true democracy must be based on an individual’s right to vote and the freedom to exercise that power at the ballot box. Since 1998, women voters have embodied that concept, achieving a majority vote with higher rates than men. Of registered women voters, 55% went to the polls in 2018, compared to only 51% of registered men. Yet today women account for only 23.2% of the members of the U.S. House of Representatives and 26% of the U.S. Senate.

Rural Americans are more likely to have a fatal cancer diagnosis and face additional concerns like fewer hospitals and physicians in a “one-size-fits-all” healthcare system. To address the disparities, the Federal Communications Commission (FCC) partnered with the U.S. Department of Agriculture (USDA) to form the Rural Telehealth Initiative.

U.S. Supreme Court Justice Ruth Bader Ginsburg was known for being a fighter—for women’s rights and equality, social justice, and even her own health, battling five bouts of cancer diagnoses. On Friday, September 18, 2020, the 87-year-old passed away from metastatic pancreatic cancer.

The cacophony that echoes through the 24-hour news cycle can be heavy on an average day but overwhelming during a global health pandemic. That is why relying on a trusted voice is essential when attempting to understand how to deal with the voluminous information that bombards us through radio, television, emails, social media, and any other channels that deem themselves news outlets these days.

Since its inception in 2015, Cancer Research UK’s (CRUK) Cancer Grand Challenges initiative has led an international research effort to address the toughest barriers to progress in oncology, investing more than $130 million into seven international, multidisciplinary teams—total of 73 researcher groups in nine countries.

Nurses are experts in advocating for their patients’ care. Taking those skills to Washington, DC, and speaking out for changes in federal health policy can have just as much impact. Even in an era of social distancing and travel restrictions, oncology nurses can bring their message to the local, state, and federal leaders to bring about change.  

Mastering the rules and regulations of democracy has been a capital city—both federal and state—game of power for more than 200 years. Those written, and too often presumed, procedures govern the process and provide a roadmap for legislators to strategize on how best to advance their agendas and campaign promises.

Cori Bush, a nurse and Black Lives Matter activist, beat U.S. Representative William Lacy Clay (D-MO), a sitting 20-year incumbent, to win the Democratic nomination in St. Louis, MO. Bush will be the newest nurse to U.S. Congress, should she win her seat in November, which is highly likely. She’d join the ranks of U.S. Representatives Lauren Underwood (D-IL) and Eddie Bernice Johnson (D-TX) to bring a critical nursing perspective directly to the United States’ legislative branch. 

In July 2020, U.S. President Donald Trump issued four executive orders to provide solutions to the ever-increasing price of prescription medications. One of the top domestic issues in healthcare is the price of prescription medication, particularly those deemed lifesaving, such as insulin for diabetics and drugs for patients with cancer. 

As one of the only not-entirely-pandemic-related health policy topics currently in policymakers’ discussions, lawmakers are again revisiting the high cost of prescription drugs. Voters have voiced concerns in the current economic climate, and, eager to appease in the months before the November presidential election, the Trump administration responded.

As one of the youngest members of the 2018 freshman congressional class, U.S. Representative Lauren Underwood (D-IL) has already made quite a name for herself. Eschewing, for the most part in this heightened environment, partisanship and instead concentrating on health and economic issues, the representative champions access and affordability for all Americans.

More than a decade has passed since the Institute of Medicine (now known as the National Academy of Medicine) published its Report on the Future of Nursing in 2010, yet not a great deal has improved.

Facilitating the provision of patient-centered care is an ONS priority. But until recently, quality information from the patient’s perspective was limited. This kind of information is often unavailable, limited in its breadth, or solicited from patients too late in the healthcare process, making their experience less understandable than necessary. In response, the U.S. Food and Drug Administration’s (FDA’s) Oncology Center of Excellence created a pilot program, called Project Patient Voice, that will make patient-reported symptoms from cancer trials available to the public.

Beginning this fall, the National Institute of Nursing Research (NINR) will have a nurse in a permanent position to lead the agency. On July 1, 2020, the National Institutes of Health (NIH) named Shannon N. Zenk, PhD, MPH, RN, FAAN, as its new director. Zenk is currently a nursing collegiate professor in the Department of Population Health Nursing Science at the University of Illinois at Chicago College of Nursing, and a fellow at the UIC Institute for Health Research and Policy.

More research funding is needed to learn about and address health disparities in African Americans in the United States, Tara Schwetz, PhD, National Institute of Nursing Research (NINR) acting director, said in an open letter to the research community. In the bold announcement, NINR recognized the unequal treatment of minorities and the need for enhanced dedication to promote equality in nursing research.

One of the ways ONS celebrated Oncology Nursing Month in May was with CEO Brenda Nevidjon, MSN, RN, FAAN, interviewing U.S. Representative Donna Shalala (D-FL) about advocacy and nursing. Miami ONS Chapter Board Member Lissette Gomez-Rios, MSN, OCN®, ONS Director-at-Large Anne Ireland, MSN, RN, AOCN®, CENP, and I also had the opportunity to ask Shalala some questions.

From 2015 to 2030, the costs associated with cancer will rise to $245 billion, researchers said in a report that was published in Cancer Epidemiology, Biomarkers, and Prevention.

Along with many other healthcare organizations, including ONS, last week the American Nurses Association (ANA) took a bold stand against racism, calling it a public health crisis. On June 12, 2020, ANA President Earnest Grant shared how racism is embedded in health care and what nurses should do to end it.

Like cancer, viruses know no political parties, no country boundaries, and no personal attributes. As the COVID-19 coronavirus spread in an infectious wave across the earth in record time, it decimated economies and devastated populations. To defend their countries against an invisible enemy, governments around the world stepped in with unprecedented command.

Fifty-seven organizations representing the Nursing Community Coalition (NCC), including ONS, sent a letter to the U.S. Congress acknowledging the federal government’s extraordinary attempts to bolster the economy and promote public health during the COVID-19 coronavirus pandemic. In the April 28, 2020, letter, NCC provided recommendations that could be used to further combat the coronavirus, adding that the 57 national nursing organizations are available as expert resources.