Grace is a 42-year-old woman diagnosed with ER/PR-positive breast cancer who has been scheduled for four cycles of docetaxel plus cyclophosphamide chemotherapy.

She has amazing curly brunette hair. Every time you see her in the clinic, she seems to have her hair styled in a different way. You and other nurses joke that she must have sisters who are hairdressers.

After chemo class, Grace sees you in the hall, and you notice that she is crying. She has just realized that her chemotherapy regimen can cause hair loss. “My hair is who I am as a person. I can’t lose my hair. Maybe I shouldn’t have chemotherapy, even though the doctor says it’s important.”

What Would You Do?

“Without hair, many women may find their identity and femininity altered, and find it even more difficult to maintain the sense of optimism that can help them cope and to maintain hope. These women need options and resources for turning their fear and anticipation into actions that reinforce their sense of control, boost their self-esteem, and give them courage to take other actions that may help improve their quality of life during cancer treatment.”

You reassure Grace that everyone at the cancer center understands and empathizes with how difficult it must be to consider losing her hair. You ask her to explain the role that her eye-catching hair has had in her life. After telling you that her hair has always been her defining feature, that she feels her hair is what is most attractive to her husband, she begins to cry again.

A cooling cap may be an option for Grace. The caps have been used since the late 1990s to prevent alopecia resulting from chemotherapy, originally using dry ice. In 2015, the U.S. Food and Drug Administration cleared the first cap that uses a cooling machine. Having read the press release, you know that it was tested on patients similar to Grace. Fortunately, you have one of the newest machines in your infusion room. But if the machine-cooled cap was not available, you planned to tell Grace about the option of the dry ice cooling cap, which has also shown an ability to decrease hair loss.

You  also talk about the significant extra time required in the cancer center to use the cooling cap, as well as costs that may not be covered by insurance. You also explain that it does not work in all women and she may still lose her hair.

Still, Grace is smiling. She says that she is confident she will be able to complete her prescribed chemotherapy regimen. She understands that the cap may not prevent her losing her hair, “but at least I’m doing something to help. it feels so much better than just sitting around waiting for my hair to fall out. Even if it doesn’t work, I know I will feel better, more confident than I did. Thank you!”

Comments

Posted by MIchelle Feins… (not verified) 11 months 2 weeks ago

There is also the Rapunzel Project for patients. The oncology office that I used to work in actually has the special freezers for the caps that the patient can use. It needs to be stressed that this is a patient driven project and they must have a partner to help because they are changing caps every 30 minutes. Out of the four patients that I worked with, two retained all of their hair, one lost 50%, and the other lost some hair post treatment.

Posted by Tricia (not ve… (not verified) 11 months 1 week ago

ONS, please correct this article. There is a very big difference between being FDA approved, and FDA cleared. Also, please consider a comment that this option is not necessarily transferable to other malignancies, as the brain is a known sanctuary site (lymphoma). Always make sure that the attending oncologist is aware of the patient's plans to use a cooling cap.

Hi Tricia, thanks for bringing the cleared/approved clarification to our attention--we have updated the article appropriately. We also appreciate your information about ensuring that the oncologist is aware--that is important as well!

Posted by Heather Pinker… (not verified) 11 months 1 week ago

Is there data to show that this will not cause harm, i.e. potential for scalp mets?

Add new comment

About text formats

Plain text

  • No HTML tags allowed.
  • Lines and paragraphs break automatically.
  • Web page addresses and email addresses turn into links automatically.
By submitting this form, you accept the Mollom privacy policy.