NINR Addresses Racism and Reinforces Mission on Positive Health Outcomes
More research funding is needed to learn about and address health disparities in African Americans in the United States, Tara Schwetz, PhD, National Institute of Nursing Research (NINR) acting director, said in an open letter to the research community. In the bold announcement, NINR recognized the unequal treatment of minorities and the need for enhanced dedication to promote equality in nursing research.
All Politics Is Local, and That’s Why You Should Get Involved in ONS Advocacy
One of the ways ONS celebrated Oncology Nursing Month in May was with CEO Brenda Nevidjon, MSN, RN, FAAN, interviewing U.S. Representative Donna Shalala (D-FL) about advocacy and nursing. Miami ONS Chapter Board Member Lissette Gomez-Rios, MSN, OCN®, ONS Director-at-Large Anne Ireland, MSN, RN, AOCN®, CENP, and I also had the opportunity to ask Shalala some questions.
Nurses Have a Role and Responsibility in Ending Racism
“There’s no way you can extricate what’s been going on and the outcomes of the (COVID-19 coronavirus) from the basic racism and social injustice and inequities that have existed in this country for so many years,” American Academy of Nursing Living Legend Catherine Alicia Georges, EdD, RN, FAAN, said in a June 17, 2020, podcast. “The chronicity of racism is the issue.”
Nurses Can Provide Safe Spaces for LGBTQ Patients With Cancer
The 2019–2022 ONS Research Agenda mentions LGBTQ patients with cancer among ONS’s research priorities for the very first time. A panel discussion at the 44th Annual ONS Congress focused on this underrepresented patient population, so we are making progress. In the past few years, our field has given a little more attention to LGBTQ patients with cancer, although I suspect that many of the issues are still pervasive.
HIV-Positive Patients With Cancer Need to Be Included in Clinical Drug Trials
Viral infections such as HIV may increase a person’s risk for developing several malignancies. However, most investigational drug studies exclude HIV-positive patients with cancer and optimal treatment regimens remain unknown.
Nurses Obliged to End Racism; Tobacco Industry's Manipulative Marketing
Along with many other healthcare organizations, including ONS, last week the American Nurses Association (ANA) took a bold stand against racism, calling it a public health crisis. On June 12, 2020, ANA President Earnest Grant shared how racism is embedded in health care and what nurses should do to end it.
ONS Joins Health Community in Condemning Racism
The death of George Floyd on May 25, 2020, spurred a national wave of protest. United in the wake of a global pandemic, people are doing what they feel is necessary to bring social justice and equality changes to the forefront of the American experience. Across the country, people are demanding immediate changes to a biased system. In a formal statement, ONS condemned racism and called for “all of us to commit to an end to hatred, discrimination, and racism in every form.”
Unique Roles in Oncology Nursing: Oncology Nurse Navigation
As early detection, treatment modalities, and symptom management advance in oncology care, we are seeing an increase in the number of adult and childhood cancer survivors. Added to the unique challenges of comorbid conditions in an aging population, oncology nurses have a lot to juggle in the spectrum of patient care. The relatively new role of the oncology nurse navigator was developed to enhance care coordination in patients with cancer.
Patients Struggle to Access BMT During COVID-19
Cancer does not stop progressing because of a pandemic. Although the COVID-19 coronavirus does not recognize that someone with leukemia has been fighting for months, even years, for remission to receive a lifesaving blood and marrow transplantation (BMT), a new program is ensuring that marrow products are available when patients need them.
International Position Statement Calls for Advocacy for COVID-19 in Oncology Nurses and Patients With Cancer
Oncology nurses must advocate for prevention and control of the COVID-19 coronavirus to minimize the risk to themselves and the patients with cancer in their care, the International Society of Nurses in Cancer Care (ISNCC) announced in its April 2, 2020, COVID-19 Position Statement. ONS is a full member of ISNCC.
Prevent, Recognize, and Manage Sepsis in Patients With Cancer
Because of weakened immune systems and prolonged treatment courses, patients with cancer have a higher chance of developing sepsis. Once acquired, sepsis puts patients at risk for hospitalization and increased morbidity and mortality. Prevention and prompt management are essential to improve outcomes.
Geographic Disparities in Cancer Care
As part of a larger understanding of the social determinants of health, geography—whether it’s rural or metropolitan, urban or suburban—plays a huge part in how patients understand, receive, and access care. Regardless of zip code, community, or travel distance, patients have a right to receive the best possible care for their cancer diagnosis. As staunch patient advocates, oncology nurses are primed to help patients navigate geographic disparities and overcome challenges they face in treatment.
Nurses Are Critical to Reducing Global Geographic Cancer Disparities
Cancer is a global health problem. According to the American Cancer Society, cancer incidence is expected to continue to grow to nearly 27 million new cases around the world by 2040. In 134 of 183 countries, cancer is the first or second leading cause of premature death for people aged 30–69 years, and it ranks third or fourth in an additional 45 countries. Although cancer is a major health issue across the world, outcomes differ depending on a patient’s country of origin.
The Case Supporting the Seasons of Survivorship
Jamie is completing her last cycle of carboplatin and paclitaxel for stage I ovarian cancer. The oncology infusion nurse notices that Jamie appears withdrawn and nervous, so he takes time to ask her how she is feeling about completing treatment. Jamie responds, “I feel as frightened about finishing treatment as I did when I was diagnosed with cancer.” She also shares that she doesn’t want to ring the cancer center’s bell to ceremoniously signify the end of her treatment because she doesn’t want to “jinx it.”
CMS Expands Project to Fight Opioid Abuse
Throughout the country, Americans have seen the effects of opioid abuse. Rising numbers of overdoses have sent shockwaves through communities from Miami to Seattle and everywhere in between. As such, addressing the national opioid epidemic is still a major priority for the Trump administration.
How Oncology Nurses Can Support Patients During Financial Toxicity
As groundbreaking yet high-cost cancer treatments make their way into clinical practice, the effects of financial toxicity can put a damper on the profound effects that new, lifesaving medications can have on patients with cancer. It’s a problem that even Washington, DC, hasn’t been able to address—so what can oncology nurses do about it?
Nurses Must Include Palliative Care Early for Their Patients
At a recent conference I attended, a presenter asked the audience to choose the best treatment option for a case study review. The choices were introduced as three separate viable treatments with the fourth option being “or just refer to palliative care.”
CDC Estimates That 92% of HPV-Related Cancers Could Be Prevented
For years, the human papillomavirus (HPV) vaccine has been promoted for its potential role in cancer prevention. In a study released in August 2019 by the Centers for Disease Control and Prevention (CDC), the agency estimated that nearly 92% of all HPV-related cancers could be prevented through proper vaccination.
Bold Drug Pricing Plan; Limiting Nicotine Levels; Representative Lowey Retires
With the 2020 presidential election cycle in full swing, some Democratic candidates are pushing an aggressive proposal to combat the rising costs of prescription drugs by potentially ending patents for high-cost medications. Breaking the patent of an existing drug to allow competitors to make a cheaper version is a bold step to combat the drug pricing issue, but the potential proposal doesn't seem to be getting much negative push back from either side of the aisle. Many see it as a way to keep the industry in check, and the provision makes for great political fodder on the campaign trail.
Isolation Hinders Care in Rural Appalachia
Found along the expansive Appalachian mountain range in the Eastern United States, Appalachia is legally recognized as an economically disadvantaged area that’s home to a unique population of patients requiring special considerations.
Cancer Prevention Starts in Childhood
The cancer prevention conversation is tricky for providers to navigate. Not surprisingly, people want to do everything it their power to prevent cancer. But sometimes conversations involve uncomfortable elements of health care—like sex or sexually transmitted diseases—that can quickly derail the discussion. Despite this, the human papillomavirus (HPV) vaccine is one case where prevention efforts have a led to huge increases in participation, especially among children. Following that thread, the Centers for Disease Control and Prevention (CDC) have committed to spearheading the cancer prevention conversation by encouraging people to discuss cancer prevention early in their children’s lives.
Social Disparities in Radiation Therapy
Global radiation oncology research has seen an increased commitment to addressing disparities in the world and at home. The more radiation oncology proves and improves itself as a therapeutic modality, the more we are faced with the reality that the odds for survival are related to geography, poverty, education, and race.
Nurses Advocate for Palliative Care, Drug Parity by Sharing Patient Experiences
With our heads held high, Michelle Santizo, RN, PHN, MSN, and I walked right into Capitol Hill, ready to tackle meetings with important members of the U.S. Congress. On that day in July 2019, we spoke with staff members working for the offices of both Kamala Harris (D-CA) and Diane Feinstein (D-CA).
Bipartisan Reps Reintroduce Cancer Care Planning and Communications Act
In divisive times, fewer congressional bills find their way to the president’s desk without considerable bipartisan support. The dance of legislation is complex. Maneuvering through the legislative terrain and avoiding political landmines requires partnerships, expert data, and—at times—a little bit of luck. In the case of the Cancer Care Planning and Communications Act (H.R. 3835), that’s the story so far.
CDC Offers Insight to Mental Health and Cancer
As health care advances, so too does our understanding about the numerous conditions affecting patients, including their mental health and well-being. Messaging from federal agencies like the Centers for Disease Control and Prevention (CDC) about mental health is taking an inclusive, wholistic approach to the many aspects of mental health. CDC presented new educational applications for providers to consider when talking to their patients about mental well-being and their continued success in treatment.
Nurse Meets With New Hampshire Lawmakers to Connect Them to ONS Health Policy
While representing ONS in June 2019 at the National Institute for Nursing Research in Bethesda, MD, I met with my state’s congressional delegation to introduce ONS’s health policy legislative agenda to their offices on Capitol Hill. Despite it being one of the hottest days on record for the nation’s capital, the congressional offices offered a cool place for health policy discussions.
No Place Like It: Home Care for Patients With Cancer
It’s more than just four walls and a roof. Home is where most people find comfort, solace, and a sense of familiarity. It’s where the heart is, and there’s no place like it. With advancements in cancer therapies, treatment care modalities, and technology, many of today’s patients are finding they can receive a large portion of their care in the home. Home care is not a new concept—rather it’s likely the oldest healthcare setting in human history—but it can be a complex and intricate care environment, especially when addressing specific needs related to cancer treatment. At its heart are expert oncology nursing professionals who safely deliver the best possible care for their patients—in the comfort of their own homes.
Advocacy Grows Through Personality as Well as Profession
The word advocacy comes from the Middle English word “advocacie” or “intercession” and the Anglo-French word “advocassie,” meaning “pleading.” As a profession, I believe nurses pride ourselves as being advocates for our patients and their families. I can easily say that most nurses—myself included—think of advocacy in terms of daily practice. We’re always making sure patients have the right resources and knowledge and have their basic needs met to get through their daily treatments.
What’s ONS’s Stance on Oncology Nursing Certification?
For many RNs working in oncology settings, certification might seem like the next step for their career and their commitment to patient-centered care. It’s important to understand the process of certification, along with what resources are available to help them succeed. ONS believes that oncology nursing certification benefits everyone in the cancer care continuum—from patients to family members to the nurses themselves and their employers. Certification shows that a nurse has voluntarily met the rigorous requirements for gaining cancer-based knowledge and experience and is prepared to provide high-quality, competent care to patients with cancer. It acknowledges a nurse’s commitment to career development and dedication to patient care in a constantly changing healthcare environment.
The Value of Oncology Nurse Certification
Oncology care is a complex field in a constant state of paradigm shifts, where new information and research affect clinical practice in countless ways. Amid rapid developments in treatments, technologies, and patient-care modalities, oncology nurses must show they’re up to date with emerging knowledge in their field. Oncology nurse certification is one way nurses can demonstrate their commitment to the art and science of patient-centered oncology care.
Prevent Important Information From Getting Lost in Translation
At the heart of patient-centered cancer care is communication and understanding, and oncology nurses have a responsibility to ensure that their patients have all the information they need to successfully navigate their cancer journey. But what happens when language barriers inhibit the flow of information between patient and practitioner?
Nurses Must Help Patients Use Cannabis Safely
Regardless of their own feelings or biases about cannabis, nurses must recognize that their patients are using it and help them to access the drug safely, Eloise Theisen, MSN, RN, AGPCNP-BC, of the Radicle Health Clinician Network in Walnut Creek, CA, said during a session on Saturday, April 13, 2019, at the ONS 44th Annual Congress in Anaheim, CA. Many patients with cancer are using cannabis and are looking to their healthcare providers for information on how they can use it to reduce their symptoms, she said.
Nurses Play a Pivotal Role as Patient Advocates in the Opioid Crisis
As the current landscape of opioid pain control becomes more complex, oncology nurses remain vital to safe and effective treatment. During a session on Wednesday, April 10, 2019, at the ONS 44th Annual Congress in Anaheim, CA, Tonya Edwards, MSN, MS, RN, FNP-C, of the University of Texas MD Anderson Cancer Center in Houston, and Timothy Tyler, PharmD, FCSHP, FHOPA, of Desert Regional Medical Center’s Comprehensive Cancer Center in Palm Springs, CA, discussed the challenges of opioid pain management as well as actions nurses can take to protect patients.
Health Policy Begins With You: Educate Your Representatives in Cancer Care
As an oncology advanced practice nurse and administrator for cancer services, every day I care for patients and caregivers coping with cancer. I mentor nursing staff in best practices to deliver care, and I create a work environment conducive to advancing quality cancer care. However, my commitment to supporting people with cancer does not end at the walls of my workplace. Oncology nurses are called to be a visible change agent in our communities—and beyond—to continue the worthy work of championing quality care for people diagnosed with cancer, along with spreading prevention and early detection information.
FDA Oncology Center of Excellence Establishes a Commitment to Patients
The U.S. Food and Drug Administration’s (FDA’s) mission is primarily to protect the American public by regulating the sale and development of consumer items like cosmetics, food, tobacco products, medication, and much more. However, a lesser known arm is FDA’s Oncology Center of Excellence, established to further prevention, detection, patient-centered research, and cancer-specific education.
President Trump Signs Opioids Legislation Into Law
Developed to combat the nation’s opioid crisis, a comprehensive opioid addiction bill has finally made its way to the president’s desk. On October 25, 2018, President Trump signed the opioid package into law. The new law allots more than $8 billion to address addiction, drug trafficking, and recovery issues.
GOP Pre-Existing Conditions Bill; Biden in Pittsburgh; McCain’s Healthcare Legacy
As the Affordable Care Act is challenged in court, 12 Republican Senators signed a letter insisting that pre-existing conditions be covered in any new healthcare laws moving forward. Despite initial praise for the GOP, many patient advocacy groups, including the American Cancer Society Cancer Action Network, have voiced concerns about the efforts being far too little and far too late. On September 4, 2018, more than 25 patient advocacy groups came together and released a statement condemning a recent Republican bill stating it didn’t provide enough protections for pre-existing conditions, compared to what’s currently covered under the ACA. The advocacy groups noted the bill's outlying weaknesses and pushed for stronger reassurances.
Oncology Nurses Must Share Experiences, Perspectives to Advocate for Change
As an oncology nurse, I’m grateful to work alongside so many colleagues who bring dedication, grace, and skill to their work. No other industry in the world shares the same frustrations or emotional tolls as nursing, but we continue to bring enthusiasm, optimism, and devotion to our daily work. Nurses strive to ensure the best for their patients. It’s the call to patient advocacy that is at nursing’s core.
Why Pretesting Counseling Is Critical in the Age of Consumer Genetic Tests
On March 6, 2018, 23andMe—an at-home genetic testing company—announced their direct-to-consumer genetic test (DTCGT) would include DNA results for the three common founder BRCA mutations commonly seen in people with Ashkenazi Jewish ancestry. This was big news because DNA results for the BRCA mutations had been previously available on the 23andMe panel report until the U.S. Food and Drug Administration removed them in 2013.
Focusing On the Little Things Can Make a Big Difference
Imagine being in a hospital, unable to verbally communicate and having to find a way to get across your basic human needs. As oncology nurses, we take care of a variety of different patients: some able to make their needs known and some who unfortunately cannot.
Financial Toxicity Discussion Needs to Include Undocumented Patients
Financial toxicity in cancer care is an increasingly recognized burden for many patients. Driven by many factors, financial toxicity is often a combination of a patient’s individual characteristics, the costs associated with care, and the overall impact of the illness on a patient’s ability to work throughout the cancer journey. Financial toxicity negatively impacts patient outcomes, and many patients struggle with costs regardless of whether they’re covered by health insurance—this includes undocumented immigrants. Currently, more than 11.1 million undocumented immigrants live in the United States, and they aren’t immune to cancer diagnoses.
Federal Officials Say No to Lifetime Limits on Medicaid; Empowered Patients Are the Future of Health Care; Healthcare Jobs Continue to Grow Faster Than Jobs in the General Economy
On May 7, 2018, the White House told the Department of Health and Human Services to overturn Kansas’s new lifetime limit restrictions on Medicaid. Kansas has been leading the way for states looking to implement restrictions to federal benefits. The state previously implemented work requirements for Medicaid recipients and was trying to impose time limits for how long recipients could receive Medicaid for some time. Had its efforts stood, this would mark a fundamental shift in how the federal program is implemented at the state level.
ONS Member Advocates for Patient Involvement in Clinical Pathways
I was selected to represent ONS as a panelist at the Cancer Innovation Coalition meeting held in Washington, DC in February 2018. The meeting, “Integrating Patient Perspective into Clinical Pathways: A Dialogue Between Stakeholders,” brought together patient advocates, healthcare professionals, and technology stakeholders to address and identify the importance of patient-centered care and involving patients in clinical pathways. The National Patient Advocate Foundation released an article outlining the topics covered in our discussion.
Why Do Oncology Nurses Need to Screen for Financial Toxicity?
It’s beneficial to think about financial toxicity in terms of issues adhering to treatment. Mounting evidence suggests that patients with financial toxicity aren’t adhering to their cancer care. It’s becoming a common side effect of cancer treatment, and patients might be less likely to take treatments their medical team prescribes because of it, leading to substandard care.
Financial Toxicity and Its Burden on Cancer Care
The cost of health care in the United States has been the source of debate for years. Questions range from the extent of Medicare and a Medicaid coverage, how—or if—the government should regulate drug prices, who deserves coverage, and how Institutions collect payments from insurance companies. But often, one important aspect is missing from the numerous conversations on health care, treatments, and financial reimbursements: the patients.
Oncology Nurses Need to Advocate for Access to Quality Care
Specialized Knowledge: Quality Care. This is my ONS presidential platform. In several columns, I have discussed how ONS resources can provide you with the specialized knowledge and expertise to provide quality care. This issue, I’d like to focus on quality care.
Republicans May Aim to Repeal ACA Without a Replacement Plan; Majority of Americans Support Government Health Care; Q and A With New Jersey State Nurses Association CEO
After failing to garner support for the GOP’s healthcare bill in the Senate—known as the Better Care Reconciliation Act of 2017—Senate Majority Leader Mitch McConnell (R-KY) noted that the next strategy for repealing and replacing the Affordable Care Act (ACA) would be to repeal the legislation without any concrete healthcare bill to replace it. In 2015, the Senate already successful voted to repeal the ACA, but it was vetoed by former President Obama. According to McConnell, the 2017 repeal effort would provide a two-year window to ensure a stable transition.
Through Early Detection, We Can Impact Cancer Mortality
Earlier in 2017, a group of 12 nurses traveled to Cuba to learn about cancer care and the healthcare system there. Cubans are very proud of their healthcare and educational systems, which are offered without charge to their citizens. We learned so much on this trip, but my take-home message from this experience was the importance of prevention and early detection.
Best Practices for Managing Patients in Palliative Care
Palliative care is a patient-centered approach that seeks to optimize quality of life. Advocacy is also important, which includes incorporating patient and family goals into the care plan, promoting communication, actively managing symptoms, promoting and nurturing transcendence and hope, eliminating patients’ and families’ fears of abandonment, and being therapeutically present. At the Oncology Nurse Advisor Navigation Summit, Bonnie Freeman, DNP, RN, ANP, CT, ACHPN, a nurse practitioner in the Department of Supportive Care Medicine at the City of Hope National Medical Center in Duarte, CA, discussed the best strategies related to palliative care.