Providing Expert Testimony in the Virginia State Senate
In early January 2019, I had the opportunity to represent ONS before the Virginia State Senate Finance Committee on the growing epidemic of electronic cigarettes and vaping device use among youth. In Richmond, VA, I delivered testimony about the dangerous health ramifications of this newer trend of tobacco use.
FDA Commissioner Advocates Against Smoking, New Vaping Devices
When heads of federal regulatory agencies are health and medical professionals with years of research experience, their background helps guide the mission and vision of the department along with the direction of thousands of staff and employees engaged in implementing health policy. U.S. Food and Drug Administration (FDA) Commissioner, Scott Gottlieb, MD, is a clinician and activist, and he acts as a staunch advocate for public health issues—namely the dangers of tobacco use, especially among young Americans.
Experience the Power of Patient-Centered Research Through PCORI
How often have you gone to the mailbox, pulled out your latest issue of the or , and excitedly read about some innovative study with game-changing outcomes that’ll revolutionize the delivery of health care—only to find that it never moves off the pages of the journal? What does it take to move research from the proverbial bench to the community? That was the focus of the Fourth Annual Meeting of the Patient Centered Outcomes Research Institute (PCORI), “ ” held from October 31–November 2, 2018, in Washington DC.
Government Shutdown; ACA Ruled Invalid; Medicare for All Push
On January 3, 2019, the newly elected, Democrat-controlled House of Representatives introduced legislation to reopen the federal government and end the current shutdown. It’s not about the money, which is usually the case; it’s about the blame. The border wall funding—in whatever capacity—is politically driving the shutdown. But Senator Mitch McConnell (R-KY) that he knows the president will veto. Democrats want that to happen to force the president to either accept the blame for the shutdown or to cave without funding for the wall and reopen the government.
What the Midterm Election Results Mean for Health Policy in 2019
Election results may appear to be seismic shifts, jarring the foundations of the American political system to its core as voters stare in disbelief, attempting to translate the meaning of the public’s intent. But is that really the case?
Experts Hold Conversations About Access and Affordability at ONS Policy Summit
Nurses should initiate financial conversations with patients early and offer resources to improve access to cancer care, speakers at the on November 13, 2018, concluded. The event, held at the Hyatt Regency Hotel on Capitol Hill in Washington, DC, brought together nurses and industry and government experts to address the issue of financial toxicity in today’s cancer care.
Former President Bush’s Legacy Holds Strong Commitment to Advancing Cancer Care
As a staunch advocate for the advancement of cancer treatments, research, and patient care, President George H.W. Bush left an enduring legacy through contributions to the field of oncology and health care in the wake of his death on November 30, 2018. His continued support of healthcare professionals—including oncology nurses—spoke to his administration’s focus before, during, and after his tenure in Washington, DC.
Lame Duck Session; Health Care to the States; Nurses in Congress
Washington insiders weren’t surprised by the election’s outcome, and the next session of Congress will be something to watch in 2019. However, the current work of politics in a lame duck session can be interesting at best and potentially dangerous at worst. Members of Congress who lost their seats are now under no obligation to their districts, leadership, or party and often vote their conscience on late-session bills.
Dems Take House; GOP Expands Senate; Science in Midterms
After an arduous campaign season, the midterm election results are mostly as anticipated. The Democrats gained seats in the House of Representatives, giving the party the majority in the lower chamber starting in January 2019. The Dems say their focus for the next congressional session will focus on health policy and high drug prices. Although the jury is still out over what the midterm elections meant, most experts agree that health care was the driving political issue for voters, regardless of party.
How I Celebrated NCC and Advocated for the Nursing Workforce
On September 12, 2018, I had the honor of attending the Nursing Community Coalition’s (NCC’s) 10th Anniversary Celebration as an ONS representative, joining members of ONS’s health policy staff. NCC is a 61-member coalition, working to further nursing education, training, and support through united advocacy efforts.
How ONS Contributes to the Value of Healthcare Coalitions
ONS, like so many membership organizations with dedicated healthcare interests, oils the gears that move the public policy machine forward. Each shift represents another opportunity for success. One such tactic is working in coalitions, and ONS is a vital member of health advocacy groups in Washington, DC, usually as the only nursing society at the table.
Oncology Nurse Appointed to PCORI Board of Governors
As the U.S. government’s arm of patient-centered research, the Patient-Centered Outcomes Research institute (PCORI) is driving new initiatives and opportunities focused on unlocking novel treatment methods and cutting-edge interventions to better care for patients. On September 24, 2018, PCORI announced its new Board of Governors, naming ONS member Christopher Friese, PhD, RN, AOCN®, FAAN, as the agency’s first nursing research representative to hold a seat on the board.
Oncology Nurses Must Share Experiences, Perspectives to Advocate for Change
As an oncology nurse, I’m grateful to work alongside so many colleagues who bring dedication, grace, and skill to their work. No other industry in the world shares the same frustrations or emotional tolls as nursing, but we continue to bring enthusiasm, optimism, and devotion to our daily work. Nurses strive to ensure the best for their patients. It’s the call to patient advocacy that is at nursing’s core.
Advocating at the State Level for Tobacco Control and Smoking Cessation
In May 2018, I participated in the American Cancer Society’s (ACS’s) Cancer Action Week in my role as a legislative volunteer for ACS’s Cancer Action Network (CAN). In this role, I advocate on the state level for various key legislative efforts for people with cancer in New Jersey.
Key Federal Health Policy Legislation Updates for 2018
’Tis the season. Well, at least in DC, it’s an exciting time. A political year. A long summer recess. A host of bills that are on the verge of passing. We are all aflutter with anticipation of the possibilities. But legislators need to remember who sent them to Washington and for what reason. Advocacy begins at home, and elected officials are heartened by what their constituents request, especially when that legislation is bipartisan and emotional and can affect people’s lives.
Two ONS Priority Health Bills Make Progress Out of House Energy and Commerce Subcommittee on Health
On June 27, the House Energy and Commerce Subcommittee on Health passed by voice vote two health bills that have been among ONS’s top legislative priorities: the Palliative Care and Hospice Education and Training Act ([PCHETA], H.R. 1676) and the Title VIII Nursing Workforce Reauthorization Act (H.R. 959). The bills are now poised for consideration by the full House Energy and Commerce Committee.
In Reversal, Trump Orders Halt to His Family Separation Rule; New York Moves Toward Legal Marijuana With Health Dept. Endorsement; Cigarettes Have to Be Labeled 'Deadly' Now. Here's Why
Recently, immigration policies have come front and center in the news. The issue of separating children from their parents at the border was elevated to a public health issue, as the American Academy of Pediatrics—among other healthcare organizations—decried the Trump administration’s policies, noting the potential for irreparable harm to children. ONS was one of the many provider groups that sent formal letters to the Department of Homeland Security, encouraging change to immigration policies that separate children from their parents.
National Capital Chapter Members Focus on Advocacy and Research Funding in DC
In our nation’s capital, healthcare policy meetings occur weekly for various government and private organizations whose aim is to improve care and conditions for patients with cancer. The ONS National Capital Chapter members are involved in lobbying on the Hill and attending meetings about improving cancer care through the ONS Capitol Hill Gang.
ONS Greater Baltimore Chapter Advocates at the State Level
In today’s increasingly fractured political environment, with heightened partisanship, Washington, DC, has become toxic. New ideas and common-sense solutions are rare and promoting issues without politicization is literally a full-time job. Interest groups are now finding policy opportunities for success in the state capitals. Some advocacy initiatives have found easier, and faster, wins for their organizational efforts at the state legislature level.
ONS Leaders Named to Biden Cancer Initiative Board and Advisory Committee
ONS President Susan Schneider, PhD, RN, AOCN®, FAAN, was appointed to the Biden Cancer Initiative board of directors, among other experts in health care, business, finance, and technology. The Cancer Initiative also named ONS Chief Executive Officer Brenda Nevidjon MSN, RN, FAAN, to its advisory committee, comprised of 25 other experts aiming to transform the way cancer is detected, diagnosed, and treated by implementing new solutions to complex healthcare problems.
2018 U.S. Budget Agreement Contains Key Wins for ONS—Plus an Area of Concern
The U.S. Congress continued its budget pattern in February, enacting another extension of the 2017 budget agreement into law on February 8, 2018. The current iteration of the budget law will raise caps on defense and non-defense spending over two years and keep the federal government running through March 23, but more importantly, it includes the following provisions of special interest to ONS.
Despite Regulations, Patients With Cancer Pain Still Need Safe Access to Opioids
Each day, more than 175 Americans die from an opioid-related overdose. Misuse of, addiction to, and overdose from opioids cost the United States $78.5 billion a year, “including the costs of health care, lost productivity, addiction treatment, and criminal justice involvement.”. Other alarming numbers abound: 21%–29% of patients who are prescribed opioids misuse them, 4%–6% of those transition to heroin, and 80% of people who use heroin first misused prescription opioids.
First Session of the 115th U.S. Congress Will See Three Oncology-Related Acts
Thousands of pieces of legislation are introduced in each Congress, but only a small percentage make it through the entire process, especially in that first year. Bills that are not voted into law and signed by the president during that two-year period “die” when the second session is completed and Congress adjourns. According to congressional rules, “A bill may be introduced at any point during a two-year Congress. It will remain eligible for consideration throughout the duration of that Congress until the Congress ends or adjourns sine die.”
CDC Releases Latest Cancer Report
Breakthroughs and advancements in research and management have significantly changed the ways we understand how cancer works and how best to treat it. Recently, the Centers for Disease Control and Prevention (CDC) released its Annual Report to the Nation on the State of Cancer.
House Passes CHIP Reauthorization Bill, Helps Insure Children With Cancer
On November 3, 2017, the House of Representatives passed HR 3922, the Championing Healthy Kids Act, which reauthorizes the Children’s Health Insurance Program (CHIP) program for an additional five years. The act also reauthorizes public health programs. Previous funding for the CHIP program had expired September 30, 2017.
CMS Finalizes Rule Reducing Medicare Part B Payments to 340B hospitals
The Centers for Medicare and Medicaid Services (CMS) finalized a rule on November 1, 2017 that would reduce the current Medicare Part B drug payment to 340B hospitals from average sales price (ASP) plus 6% to ASP minus 22.5%. However, rural sole community hospitals (SCHs), children’s hospitals, and PPS-exempt cancer hospitals are excluded from this payment adjustment in 2018.
Commissioner Gottlieb Comments on Nicotine Regulation
In May 2017, Scott Gottlieb, MD, was named as the newest U.S. Food and Drug Administration (FDA) commissioner. He’s since shown a commitment to regulating tobacco and nicotine delivery systems—such as e-cigarettes—especially when it comes to children. In one of his public forums, Gottlieb spoke about the FDA’s commitment to continued oversight and regulation of these products and their distribution, a stance that’s drawn support from the medical community.
Advocacy Can Make a Difference
As part of its mission, ONS honors and maintains nursing’s historical and essential commitment to advocacy for the public good. Working collaboratively with policymakers, cancer and nursing community advocates, and other stakeholders at the local, state, federal, and international levels, ONS seeks to integrate the nursing perspective throughout the policymaking process and urges that oncology nurses be appointed to all relevant federal panels, committees, commissions, and boards. During its September conference call, the ONS Board of Directors focused on two key areas of ONS advocacy.
All Politics, Even Health Policy, Is Local
Former Speaker of the U.S. House of Representatives Tip O’Neill was fond of saying, “All politics is local.” What he meant was, if an elected official took care of the constituents back home, then whatever happened in Washington, DC, wouldn’t matter as much. Whatever issues most affected voters in the legislative district, then that is where members of Congress should spend their time.
ONS Opposes CMS Adjustment Payments for Part B Drugs
On August 21, 2017, ONS submitted comments to Centers for Medicare and Medicaid Services Administrator Seema Verma, opposing the agency’s proposed policy to include Medicare Part B drugs in the calculation of Merit-Based Incentive Payment System (MIPS) payment adjustments.
ONS Shares Views on Advance Care Planning, Patient Access to Opioids in Comment Letter to CMS
ONS joined the Patient Quality of Life Coalition (PQLC) in signing a final comment letter to the Centers for Medicare and Medicaid Services (CMS) administrator, Seema Verma, on the agency’s proposed 2018 updates to the Quality Payment Program, CMS-5522-P. PQLC, which represents patients, health professionals, and healthcare systems, advocates for palliative care for patients and families facing serious illness.
The Impact of PCHETA on the Quality of Cancer Care
As a national nursing organization with a specialty in cancer care, ONS occupies a unique space in the healthcare public policy environment. When nurses speak, decision makers listen, because nurses are the most trusted healthcare providers. This is not an insignificant fact to those who decide how to implement health policy decisions through law and the regulatory system.
Republicans May Aim to Repeal ACA Without a Replacement Plan; Majority of Americans Support Government Health Care; Q&A With New Jersey State Nurses Association CEO
After failing to garner support for the GOP’s healthcare bill in the Senate—known as the Better Care Reconciliation Act of 2017—Senate Majority Leader Mitch McConnell (R-KY) noted that the next strategy for repealing and replacing the Affordable Care Act (ACA) would be to repeal the legislation without any concrete healthcare bill to replace it. In 2015, the Senate already successful voted to repeal the ACA, but it was vetoed by former President Obama. According to McConnell, the 2017 repeal effort would provide a two-year window to ensure a stable transition.
UNC’s Norman Sharpless Named NCI Director; Senators Back to Work on Healthcare Bill; National Institutes of Health Director to Remain
On June 12, 2017, President Trump named Norman Sharpless, MD, as director of National Cancer Institute (NCI). Sharpless, formerly the director of the Lineberger Comprehensive Cancer Center at the University of North Carolina, is a practicing oncologist and cancer researcher. He will take over as for Doug Lowry, MD, who has been the NCI’s acting director since 2015.
Presidential Personnel Appointments That Affect Healthcare Policy
There is a difference between campaigning and governing. Running for office is about putting out bold ideas and galvanizing a base of supporters who are energized by the opportunity for real change. It’s exhilarating and fluid. The momentum can be like a rock concert, and people are carried away with excitement about the future.
Serving on Boards Allows Nurses to Improve the Nation’s Health
As the largest healthcare profession and the one most trusted by the public in the annual Gallup survey, nurses have the power to improve the health of communities throughout the country by bringing their expertise into the boardroom. However, we are an absent voice in so many of those boardrooms.
Cancer Death Rates Continue to Fall; Biden Continues Work on Cancer Moonshot; GOP Looks to Revise Replacement Healthcare Plan; ONS Submits Letter of Support for New ICD-10 CM Code
The National Institutes of Health (NIH) recently released the Annual Report to the Nation on the Status of Cancer, 1975–2014. According to the report, cancer death rates fell for 11 of the 16 most common cancers in men and 13 of the 16 most common cancers in women. Death rates fell for female breast cancer, lung cancer, colorectal cancer, and prostate cancers, among others. The report also notes that incidences of cancer decreased in men but plateaued for women in the same time period.
Trump Budget Proposal Cuts Healthcare Spending, Research; GOP’s Healthcare Bill Faces Stiff Resistance
On March 15, 2017, the Trump administration released its first budget proposal, slashing federal spending in many areas of health care, education, environmental protection, and the sciences while increasing funding for defense and homeland security. The proposed budget would decrease spending for the Department of Health and Human Services by nearly 18%, which includes a 20% budget cut for the National Institutes of Health (NIH)—a decrease of nearly $6 billion. This stands to impact a number of cancer-related research programs developing new treatments and drugs through NIH funding.
GOP Announces Healthcare Replacement Plan; CMS Nominee Confirmed; Secretary Price Discusses Repeal, Replace
On March 8, 2017, House Speaker Paul Ryan announced the American Health Care Act (AHCA), the Republican replacement plan for the Affordable Care Act (ACA). The AHCA is becoming known to many on Capitol Hill as Trumpcare, and it’s already facing stiff opposition from Democrats and Republicans alike. Many conservative Republicans are calling it Obamacare 2.0 and expected a full repeal of the ACA. Moderate Republicans are unlikely to support the bill, because it could potentially strand millions without insurance coverage provided by the ACA.
Concern Over ACA Repeal, Bipartisan Support Against Opioid Epidemic, ACA Replacement May Mean Unwanted Limitations
In a series of articles published by the Washington Post, patients living with cancer are speaking out against the potential harm that could impact cancer care with repeal of the Affordable Care Act (ACA). Told through each patient’s own experience with the ACA, the stories paint a vivid picture for lawmakers on Capitol Hill. By putting a face to those affected by repealing the ACA, this series may give representatives pause before they consider getting rid of the healthcare bill.
Opportunities Exist for Health Policy Compromise in 2017
The 115th U.S. Congress was sworn into office on January 3, 2017. Capitol Hill was abuzz with congratulatory smiles, wide-eyed optimism, and not a small amount of relief for those who survived last November’s election.
Now Is an Exciting Time for Advocacy
The Important Health Policy Issues Oncology Nurses Should Know for the 2016 Presidential Election
New Law and Policies Will Fight Opioid Epidemic
Nursing Is the Skeleton of the Healthcare System
National Quality Forum Seeks Comments for Quality Measures
The National Quality Forum (NQF) Cancer Project 2015–2017 seeks to identify and endorse performance measures for accountability reporting and quality improvement that specifically address conditions, treatments, interventions, or procedures relating to cancer. A detailed overview of the goals/objectives of the Cancer Project is provided by NQF.