Nurses Present Patient-Centered Research on Survivorship and Health Disparities
Distress, uncertainty, and barriers to care are common experiences for patients with cancer and survivors. Yingzi Zhang, PhD, RN, of the School of Nursing at the University of Rochester in New York, and Jin Young Seo, PhD, WHNP-BC, RN, of Hunter College in New York, NY, reported on their research on quality of life and access to care in vulnerable patient populations.
Glioblastoma Diagnosis, Treatment, Side Effect Management, and Survivorship Recommendations
Glioblastoma or glioblastoma multiform (GBM) is a primary central nervous system tumor. Approximately 23,890 new brain tumors are diagnosed in the United States each year, with GBM accounting for 38%. GBM can present as a primary diagnosis or evolve from a lower grade brain tumor.
Opioid-Related Death Rates Are Increasing, But Less So in Cancer Survivors
Although opioid-related deaths are increasing in the general U.S. population, leading to the U.S. Department of Health and Human Services declaring it a public health emergency, new research shows that the increase is much smaller among patients with cancer, even though opioids are used as an option for cancer-related pain. The findings were published in JAMA Oncology.
Pediatric Cancer Survivors Require Additional Care and Monitoring
Most cancer diagnoses in the United States occur later in life, in patients older than 60 years, although most of the common pediatric diagnoses occur in those younger than 10 years. Pediatric and adult patients receive similar cancer therapies. The goal is to kill rapidly dividing cancer cells. Unfortunately, most of a child’s cells also undergo rapid division, and treatment can damage healthy tissue. Therefore, treatment that cures pediatric cancer can also cause long-term survivorship issues.
Myeloproliferative Neoplasm Symptoms, Diagnosis, Treatment, and Survivorship Recommendations
Myeloproliferative neoplasms are a group of blood cancers that start with a small mutation in the stem cells of the bone marrow. Although MPNs are quite rare, essential thrombocythemia, polycythemia vera, and myelofibrosis are the most common types. Each represents a mutation of a different source of stem cell.
Secondary Cancers in Pediatric Survivors
A child’s cancer diagnosis can tear apart a family’s sense of security. After successfully navigating the cancer experience and all that comes with it, no one wants to face that again, and patients and families may fear an increased risk for secondary cancers. Oncology nurses can support pediatric cancer survivors and their families with resources for monitoring and reassurance about the possibility of facing secondary cancer.
Mental Well-Being Is a Focus of Primary Care Throughout Survivorship
Primary care for patients who are cancer survivors is multifaceted. Although my goal as a primary care physician (PCP) remains the same as with all my patients—to continue helping them lead long, healthy lives—care for this population requires some additional steps.
Colorectal Cancer Prevention, Screening, Treatment, and Survivorship Recommendations
Colorectal cancer (CRC) is the third most common cancer affecting men and women in the United States. When CRC is found at an early stage before it has spread, the five-year relative survival rate is about 90%, yet it remains a leading cause of cancer-related death among both genders.
Cardio-Oncology Program Monitors Heart Toxicities Throughout Survivorship
Cancer is second only to heart disease as the leading cause of death in the United States. But heart conditions overlap with cancer in more ways than mortality. Chemotherapy, immunotherapy, radiation, and the myriad medication combinations used in cancer can lead to various complications, including cardiotoxic side effects. Because of the prevalence of heart disease, many patients with cancer also present with pre-existing cardiac comorbidities.
Commission on Cancer Revises Its Standards. Here Are the Takeaways for Oncology Nurses.
Oncology nurses are critical to meeting three components of the newly revised Commission on Cancer (CoC) standards released in fall 2019: certification, survivorship, and barriers to care.
The Case Supporting the Seasons of Survivorship
Jamie is completing her last cycle of carboplatin and paclitaxel for stage I ovarian cancer. The oncology infusion nurse notices that Jamie appears withdrawn and nervous, so he takes time to ask her how she is feeling about completing treatment. Jamie responds, “I feel as frightened about finishing treatment as I did when I was diagnosed with cancer.” She also shares that she doesn’t want to ring the cancer center’s bell to ceremoniously signify the end of her treatment because she doesn’t want to “jinx it.”
Nurses Need Resources, Data to Support Patients Transitioning to Survivorship
Since the National Academies of Medicine (formerly the Institute of Medicine) issued Cancer Patient to Cancer Survivor: Lost in Transition in 2005, the oncology field has made small strides to implement successful survivorship resources to support patients after their treatment. Because of the vast differences in patient populations, disease types, study locations, and institutional resources, best practices to support patients transitioning from treatment to survivorship care are often unclear. This poses an issue for providers, and patients hear mixed messaging or little information for follow-up care. With many patients receiving treatment in outpatient settings, ambulatory oncology nurses must understand how to provide support for patients during their transition.
Pediatric Cancer Survivors Have Higher Mortality After Adult Breast Cancer Diagnosis
Women who survived pediatric cancer but developed breast cancer as an adult are more than twice as likely to die prematurely, mostly from comorbid conditions, according to results of a study published in the Journal of Clinical Oncology.
Hematologic Cancers Have Higher Long-Term Risk of Clots and Bleeding
Patients with hematologic cancers have a 19% increased risk for blood clots or bleeding events even 10 years after diagnosis, according to the results of a study published in the Journal of Thrombosis and Haemostasis.
Healthcare Price Transparency; Cancer Survivor Caucus; Insurers Sue for ACA Backpay
Since 2016, then-candidate Trump promised he was going to bring healthcare costs under control. In a White House announcement on June 24, 2019, the president took steps to add transparency to the process by requiring insurance companies, hospitals, and physicians to identify fees and costs in public and simple ways for patients to see in advance and to understand.
Survivorship Considerations After CAR T-Cell Therapy
As more patients receive treatment with chimeric antigen receptor (CAR) T-cell therapy, oncology nurses will need to be aware of the long-term effects of treatment that may persist into survivorship. However, because the treatment is so new, studies measuring those patient-reported concerns are still forthcoming. The majority of today’s recommendations for survivorship management are based on experts’ clinical experience.
Nurses Can Address the Challenges of Survivorship Care
Early diagnosis and advancements in cancer treatment have markedly improved five-year cancer survival rates. By 2026, an anticipated 20.3 million cancer survivors will be living in the United States. On Saturday April 13, 2019, Kathleen Wiley, RN, MSN, AOCNS®, discussed survivorship care and the challenges that nurses are perfectly positioned to address during a clinical chat at the ONS 44th Annual Congress in Anaheim, CA.
Drug Pricing Talks; Clinical Trial Barriers; Survivorship Challenges
Rising prescription medication costs has been a major focus area for both the Trump administration and the 116th Congress. In January 2019, both the House and Senate committees of jurisdiction held public hearings on soaring drug costs. Despite constant media attention and mounting pressure from government officials, no pharmaceutical company executives chose to testify. Congress threatened to subpoena the industry if it happened again.
Study Identifies Factors Associated With Long-Term Survival in Metastatic Breast Cancer
Few women with metastatic breast cancer live five years or longer, and predictors of long-term survival are not well understood. Researchers from the University of Pittsburgh Medical Center (UPMC) in Pennsylvania identified demographic- and disease-specific factors related to survival and presented their findings at the .
Long-Term Lymphoma Survivors Describe Unmet Needs in Cancer Care
Although patients with Hodgkin lymphoma can experience long-term survival, they may face difficulty in coping with treatment-related adverse outcomes. Researchers assessed the needs of lymphoma survivors and their caregivers and identified unmet patient-oriented research needs: quality of life after treatment, messaging and communication between the scientific community and patients, and emotional well-being. Jackelyn B. Payne, MPH, BS, BA, of Stony Brook University in New York, discussed the findings at the ASH Annual Meeting on December 2, 2018.
APRN-Led Clinics Enable Comprehensive Survivorship Care
A survivorship clinic allows APRNs to practice autonomously and highlights their strengths and skills, including assessing long-term toxicities, providing expert symptom management, coordinating with other disciplines, and making referrals as appropriate. Long-term toxicities from cancer treatment are disease- and treatment-specific and will be unique to each patient.
CDC Offers Insights and Resources for Cancer Survivorship
Cancer prevention is a full-time job, and the Centers for Disease Control and Prevention (CDC) works around the clock to raise awareness and promote necessary early detection and screening methods. Cancer survivors are a unique subset of patients and require information that’s been individualized to the survivorship experience.
What the Research Says About Supporting Cancer Survivors in Non-Oncology Settings
In 2016, the American Cancer Society (ACS) reported that the number of currently living cancer survivors is estimated at 15.5 million Americans. For 2018, ACS is projecting another 1.7 million new cases of cancer diagnoses. On one hand, the growing number of survivors indicates that early diagnosis, new technologies, targeted interventions, treatment options, and access to care are making a huge difference for patients.
How Are You Supporting Survivors Through EMR-Integrated Survivorship Care Plans?
Incorporating survivorship care plans into a hospital’s electronic medical records (EMRs) can be a tremendous aid for oncology nurses supporting their patients entering survivorship. Using the National Comprehensive Cancer Network treatment guidelines as a template for care, the oncology team can prepare a patient’s medical record with the necessary individualized information.
Caring for Patients Through All Levels of Survivorship
The medical terms for living with and beyond a cancer diagnosis identify patients as entering the survivorship phase of their cancer journey. However, as science continues to develop new treatments responsible for extending patients’ lives, new levels of survivorship are being determined.
How Oncology Nurses Can Support Childhood Cancer Survivors
More than 13,000 children are diagnosed with cancer every year in the United States. Because treatment options continue to improve, more than 80% of those children will survive at least five years after their diagnosis.
Childhood Cancer Act Signed Into Law; Study Finds That Many Patients With Breast Cancer Can Skip Chemo; Plan to Lower Drug Prices Could Increase Costs for Some Patients
It’s been a long time coming, but the Childhood Cancer Survivorship, Treatment, Access and Research (STAR) Act was finally signed into law on June 6 by President Trump. The act focuses on advancing pediatric cancer research and treatments along with improving screening programs and supporting patients into survivorship. As with many issues in the U.S. capital, the issue had two sides: many healthcare professionals see it as a win to support childhood cancer survivors, but it raised concerns for others about potential coverage issues.
Nurses Should Focus on Goal Setting and Shared Decision Making in Cancer Aftercare Conversations
Goal setting and shared decision making are important components of aftercare for cancer survivors. In the results of a study published in conjunction with the 2018 American Society of Clinical Oncology Annual Meeting, researchers shared their experience developing and pretesting a systematic conversation approach for nurses to tailor the aftercare needs and goals of cancer survivors.
House and Senate Pass the Childhood Cancer STAR Act
On May 22, the U.S. House of Representatives passed S.B. 292, the Childhood Cancer Survivorship, Treatment, Access, and Research (STAR) Act. The legislation will improve efforts to identify and track childhood cancer incidence, improve quality of life for childhood cancer survivors, ensure pediatric expertise at the National Institutes of Health by requiring the National Cancer Advisory Board to have at least one pediatric oncology expert on its board, and identify opportunities to increase childhood cancer research to better treat the 10,270 children diagnosed with cancer in the United States every year.
APRNs Bridge the Gap in Survivorship Care
As improved screening, diagnosis, and treatments lead to cancer’s classification as a chronic disease, people with cancer are surviving longer than ever before. However, with lengthened survival comes long-term physical and emotional symptoms and other sequelae that require ongoing surveillance and management. Advanced practice registered nurses (APRNs) are essential to delivering quality survivorship care.
Get an Overview of Radiation Therapy for Cancer
Radiation therapy is a precise cancer treatment that targets tumor cells specifically and spares healthy surrounding tissues. Contrary to pharmacologic treatment methodologies, side effects are predominantly site-specific.
Heart Failure Affects Long-Term Survival Among Older Women With Breast Cancer
Research has shown that women aged 65 and older who have breast cancer experience higher rates of heart failure compared to their age-matched counterparts, ranging from 29% of women with breast cancer who received no chemotherapy to 38% of women who received treatment with anthracyclines. However, little is known about the association between heart failure and long-term survival in older women with breast cancer, and it is unclear how the relative contribution of heart failure to mortality risk varies by breast cancer stage.
Adherence to Nutritional and Physical Activity Guidelines Improves Survival in Patients With Colon Cancer
The American Cancer Society (ACS) has guidelines on nutrition and physical activity for cancer survivors that focus on healthy body weight, physical activity, and a diet high in vegetables, fruits, and whole grains. To assess how adherence to those guidelines impacts disease-free survival (DFS), relapse-free survival (RFS), or overall survival (OS), researchers conducted a prospective study of 992 patients with stage III colon cancer who enrolled in an adjuvant chemotherapy clinical trial between 1991 and 2001. The researchers presented the study at the ASCO Annual Meeting.
Healthy Lifestyle Choices for Survivors of Cancer
The 2012 American Cancer Society (ACS) guidelines on nutrition and physical activity for cancer survivors suggest achieving and maintaining a healthy weight, engaging in regular physical exercise and following healthy dietary patterns.
The Role of Acupuncture in Treating Hot Flashes in Breast Cancer Survivors
Hot flashes, also known as hot flushes, are marked by periods of sudden, intense feelings of warmth that begin at the chest and radiate to the neck and face, along with flushing, sweating, and heart palpitations, lasting several seconds to minutes. Compared to healthy postmenopausal women, breast cancer patients and survivors are prone to experiencing more severe and longer-lasting hot flashes. A bothersome symptom, hot flashes can occur anytime during a 24-hour period, but those occurring at night are most troubling because they interfere with sleep. Sleep deprivation negatively impacts daytime functioning as well as pain, fatigue, depression, and anxiety levels, diminishing quality of life significantly.
Patient-Reported Tool to Evaluate Distress Predicts Survival
The Living With Cancer (LWC) patient-reported outcome (PRO) tool evaluates distress in patients with advanced cancer using a seven-item Likert survey to measure performance status, pain, burden (financial and family), and depression, with scores ranging from 0–112.
Annual State-of-Cancer Report Encouraging for Patients, Providers
The latest edition of the Annual Report to the Nation on the Status of Cancer, 1975-2014, confirms that death rates are decreasing for 11 of the 16 most common types of cancer in men and 13 of the 18 most common types in women.
How Do You Use Free Online Tools to Create Survivorship Care Plans?
Journey Forward, a free online survivorship tool, allows oncology professionals to create personalized treatment plans, treatment summaries, and care plans that can be printed out and shared with patients and their primary care providers.
New Web Tool Seeks to Advise Cancer Survivors on Managing Health
In a joint venture between the National Cancer Institute (NCI) and the American Cancer Society (ACS), a new web tool aims to provide better understanding for cancer survivors’ treatment options and what happens to them when treatment is over. The initiative, Springboard Beyond Cancer, is meant to empower survivors by providing them when education and resources about living beyond their cancer diagnosis. Springboard Beyond Cancer aims to address the following survivorship issues for patients.
Aerobic and Resistance Exercise May Reduce Comorbidities in Cancer Survivors
Genetic Testing Is Important for Survivorship
Cancer survivorship is filled with many challenges, hopes, and expectations. June 5 marks National Survivorship Day, and survivorship is being celebrated throughout the month. Survivors are often not sure where they're going once their cancer journey commences. In my practice, I care for people with a genetic risk for cancer, and I work with survivors on a regular basis.